What’s your barometer for keeping things in perspective?

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For the past four months or so for me, it’s been Facebook.

Not because of the constant status updates (from the witty to the mundane) or the pictures of new babies, houses, holidays or parties. 

All that’s been great but what I’m talking about reading a dear school friend document his tremendous, terrifying and courageous battle with an aggravated form of leukemia.

Since shortly after his diagnosis Andrew and his fiancé Sarah tracked his condition almost daily. A glance at his profile would let you know where he was at the time and how he was feeling about it.

He was very often angry, tired and weak. And the drugs he was given could make him spaced out and slightly high. In those times it wasn’t unusual to read him sing-posting the words of funny songs from bands like Ween.

Sarah would respond lovingly, always quick to reply and share the joke or the boredom depending on what kind of day he was having. 

Facebook was also how many of us knew they were engaged.

As the weeks went on, it became one of the best ways of communicating particularly when it was difficult to visit. And it was great to read the enthusiastic lines of well-wishers sending him hugs, prayers, laughs and luck after every one of his posts.

At first I didn’t quite know how to take reading about what he was going through this way. It was uncomfortable to know that no matter what else was going on in my day, looking at Facebook meant remembering how sick he was.

There were also a number of times when I didn’t know how or if I should respond and it was of these times that I decided to send him a message to find out how he was.

“Is that all you’ve got,” he responded.

I was shocked and spent the rest of the day being angry with myself. Did I really have nothing else to write someone who was trapped in a hospital bed and feeling so sick?

The next day, inspired by a more positive update he’d posted that morning I found myself writing:

“Hi, Yep that was a crap question you’re right. But it’s so hard to know what to ask you. I can’t imagine how you are feeling but I’m thinking of you.”

“That’s better. So how’s work?” was his reply and a real conversation took off. 

Last Friday afternoon things took a serious turn for the worse and Sarah posted that Andrew had been taken into intensive care. On Saturday afternoon he passed away.

I found out the news the next morning; someone had posted a message of farewell on Facebook. 

At first it felt it wasn’t the right way to do it,  a message on Facebook felt in-appropriate.

But later in the day conversations with close friends from school got me thinking.

One friend had called from the UK in shock after reading the message. Another remarked in the wake of the horrible news how totally irrelevant the trials of her morning now seemed. Just before the phone call she’d been shouting at her young kids, angry about a messy house. 

And then for a brief moment despite the shock and sadness, something made sense. 

For most of the time that Andrew’s been sick his Facebook status has been his way of communicating and sharing the ups and downs of what he was experiencing. And just like in real life on Facebook Andrew was noisy, brash, direct and incredibly funny. 

Not only was this honesty courageous it’s been a stark reminder to stop worrying about the irrelevant stuff and to be damn appreciative of the health and the life that we have. 

It’s not been as easy to log onto Facebook this week, probably because I know he’s not there. 

But it’s also occurred to me that maybe the choice Andrew made to share his terrible battle this way will leave more than one of us understanding just how great we’ve got it.

10 comments

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    • T.Chong says:

      06:08am | 23/10/09

      Facebook, Twitter, etc are/should only be a mode of communication, and not be the issue itself.
      The same faux pas, or brillant observations can be made via phone, letter, or face to face.
      “Live every day as its your last, because one day ...,”

    • Matthew da Silva says:

      06:57am | 23/10/09

      That’s a great story, Lucy. Well done. It’s probably the first story of its kind that I’ve read. Often Facebook gets short shrift from journalists, who can be abrasive and dismissive about status updates and how ‘trivial’ they might be. But you’ve shown how SM can function in a way that no other form of media can. Thanks.

    • James says:

      07:29am | 23/10/09

      Great article Lucy. I think a lot of people get caught up in the day to day insignificant events. Nice to remind people to raise their head occasionaly and look around to enjoy the only life we have. It could always be much worse.

    • Ben says:

      07:54am | 23/10/09

      With hectic modern lifestyles I think it is necessary for everyone to have some sort of perspective barometer, although as you have experienced Lucy it is all too often a moment of great sadness or a really big health scare that gives us that bit of clarity.

      I think the hardest thing is being able to hold onto that perspective to be able to benefit from it for any sustained length of time. Like anything it fades with time.

      I think the up side of this for you is that every time you open Facebook from now on you will be reminded how lucky you are, even if there is nothing to read.

    • Steve S says:

      07:57am | 23/10/09

      Completely understand where you were coming from in relation to what to write in situations such as this…......not necessarily death situations but relationship breakdowns, job losses etc….....whilst sites like facebook make it easier to communicate with a number of people all at once and also gives people who struggle to have a conversation due to shyness etc an opportunity to be heard, you also are paranoid about getting the written message correct…......whilst the spoken word may do more immediate harm, it can be forgotten whilst the written word is there until deleted…........I think facebook is a good venting tool for those people in situations like your friend…............it makes us confront our own selfishness and reminds us of how trivial it is if the train is late, the house is untidy, your horse runs last in the Caulfield Cup…....

    • KM says:

      08:46am | 23/10/09

      My granpa really loved facebook - being very technologically savvy for his age! When he passed away, we decided to keep his profile up.. It’s almost like an online memorial of him. I know that maybe it seems strange to some, but I think you make some good points in this article..that facebook isn’t necessarily inappropriate to share the important stuff on.

    • mark says:

      09:37am | 24/10/09

      i must qualify this statement, and admit to a few hundred friends (mostly aquintances at best), numerous log ins and the occasional status update on FB.
      My biggest hope for the facebook phenomena is the reduction of the cult of celebrity. I hope people find as much joy delving into the lives of people around them, school friends and misplaced family memebers, rather than hotel chain heiresses, .
      I would much rather see “Johno” from year 9 and his three kids holiday snaps, than Bec Hewitt with her personal trainer/ current secret love/ brother.

    • regina says:

      04:06pm | 24/10/09

      lucy, ironically im no longer on facebook for similar reasons i suppose to you being back on it.

      after my sister died of leukaemia last year i found myself unable to post anything of substance. my status remained ‘still in black and feeling blue’ for the longest time. and it seemed to be ignored by one and all, like a big black cloud had descended upon my virtual profile.

      of course i was constantly reminded of how for everyone else it was business as usual. a friend would bitch about a sibling or the fact that it was raining and id want to punch someone in the nose.

      others would send me virtual hugs - cupcakes even - and these were people who lived only a few suburbs away. well i guess that abrograted their guilt in not popping in for a cup of tea?

      then i received an update from one particularly sensitive soul claiming he’d rather die than spend another summer in sydney. i read it again. i know he didn’t mean it literally, but ‘die’?! really?

      i just think fairweather friendships take on a life force of their own on facebook. so for me staying away from it is MY way of focusing on what really matters.

      thanks for the article lucy. and i’m sorry for the loss of your friend.

    • Nate H says:

      07:19pm | 26/10/09

      That was a great read, thanks Lucy. I also found a similar comfort in Andrew’s regular FB updates. He will be greatly missed.

    • Kate says:

      03:30pm | 27/10/09

      @Regina -
      I’m sorry that you are going through a hard time after the loss of your sister.
      If I could offer any advice though, it would be not to retreat from places like facebook and other ways of communicating with friends.
      It’s understandable that you are feeling upset and lonely. I’m sure your friends do sympathise. But their lives go on and you can’t expect them to tiptoe around you for months on end. I know people whose facebook statuses are always gloomy - and I never know what to say. Beyond the first few “I’m here for you and I hope you feel better”, you really are lost for words.

      Personally, as someone with depression and OCD, I love when my friends don’t mollycoddle me. Sometimes the best way of forgetting about my problems is reading about someone else’s. I’ve ready plenty of status updates and had conversations where someone goes “my exam was so bad I was ready to kill myself”, or “I’m so anal about my notes it’s like I’ve got OCD or something”. I don’t take offense because really, what’s the point? When you are down you need your friends and there’s no quicker way to alienate them than by making them afraid to talk to you for fear of saying the wrong thing.

      I hope that in time you will feel strong enough to reconnect with your friends, whether via facebook or otherwise. Best of luck.

 

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